BHP public involvement groups
Explore our PPIE groups by specialism:
| PPIE group name | Research focus | Contact email | |
|---|---|---|---|
Ageing | Aston Research Centre for Health in Ageing Research Advisory Group (ARCHA) | The mission of the Aston Research Centre for Health in Ageing (ARCHA) is to understand, predict, prevent and treat age-related degeneration and disease. We have a specific focus on health, metabolism, the mind, and medicines in the context of the biology, psychology, and clinical aspects of ageing. | Andrew Schofield – Aston University |
Cancer and blood disorders | Cell Therapies for blood disorders and cancer PPIE Strategy Group and mailing list | Our research aims to develop new kinds of cell therapies for blood disorders and cancer, and create better ways to follow up patients receiving treatment, to better support their care. | Karen Shaw – UoB |
The Involvement and Engagement in Cancer Research at Birmingham (ICRB) | Early phase cancer trials. This PPIE group has a wide range of members covering a range of cancer related conditions. | Karen Turner – CRCTU | |
GO Further | Gynaecological oncology – for further information visit the group website. | Elaine Leung – UoB | |
Chronic Lymphocytic Leukaemia (CLL) group | Chronic lymphocytic leukaemia. | Helen Parry – UoB | |
Cardiovascular | Thrombo-inflammation PPIE group | Analysing large sets of information (large-scale data) and testing new drugs to understand the effects of inflammation and blood clotting in cardiovascular diseases such heart attack, stroke, vascular dementia, hypertension and venous thrombosis. | Alastair Mobley – UoB |
Children and youth | The Youth Voice Council (YVC) | The Youth Voice Council (YVC) is one of the patient carer councils at UHB and exists to improve the care of 16-24 year old patients at UHB hospitals. The group meets monthly and although its focus is service delivery, it can be contacted for research involvement purposes too | Rebecca McNamee – UHB |
Young persons advisory group (YPAG) | YPAG is a youth engagement and advocacy group made up of young people aged 11-19 including patients, ex-patients, siblings and members of the local community who are interested in helping shape healthcare services and making them as young person-friendly as possible | BWC YPAG | |
Youth Space | This is a group of 13 to 21 year olds who meet on a monthly basis to give young people a voice, working with the Trust to tell them about what they think is good and how they can make improvements to future services. The group isn’t primarily focused on research but can be approached to support with research questions. | SWBH Engagement | |
NIHR Clinical Research Network (CRN) Young research champions group (YRC) | This group of 8 to 18-year-olds meets every six weeks at the Children’s Hospital offering young research champions the opportunity to make research the best it can be for other young people. The group works alongside doctors, nurses and researchers to gain confidence, and attends conferences related to research and development. | Carly Tibbins – BWC | |
Community engagement – general | Community Connexions | Community Connexions is a patient and public engagement programme based within Birmingham Community Healthcare NHS Foundation Trust, that helps to adapt services to better meet local needs, inform future health research and develop understanding for prevailing health inequalities across these regions. The group’s aim is to actively listen, share understanding and collaborate with a broad spectrum of community and voluntary organisations from faith organisations, local charities groups, mutual aid groups and community forums.
| BCHC Community Connexions team |
Data | PIONEER Acute Care Public Advisory Group | PIONEER, The Data Hub for Acute Care, enables innovative researchers and companies to develop, test and deliver advances in clinical care with real-time information and support services. | Faduma-Zahra Gure – UoB |
Gastro-intestinal | Liver & Gastro-Intestinal PPIE group | Researching into inflammatory liver disease and inflammatory bowel disease – part of the NIHR Birmingham Biomedical Research Centre (BRC). | Laura Chapman – BRC |
Global surgery | Global surgery patient and carer group | The NIHR Global Surgery Unit (GSU) is part of the UK’s National Institute for Health and Care Research (NIHR) and focuses on improving surgical outcomes in low- and middle-income countries (LMICs). Its main remit is to conduct high-quality, collaborative global health research to reduce the morbidity and mortality associated with surgery in these regions. | Michael L. Bahrami-Hessari – UoB |
Hip and knee replacement | The Royal Orthopaedic Patient Engagement Coffee Mornings | Although not a traditional public involvement group, 400 patients who have had hip and knee replacements are invited to attend a coffee morning to gain advice from healthcare clinicians and to share their experiences of care at the Trust. The coffee morning runs every two months and targets those who have undergone surgery in the past six months. With participants seated in groups of 8-12 individuals, clinicians and researchers move from table to table and discuss matters of interest with patients.
The coffee morning offers a supportive environment for patients and is an opportunity for patients to provide feedback on services, but also allows patients to support research studies. Researchers from within the ROH and from external organisations can talk to the group about forthcoming research projects and recruit volunteers for research involvement if needed. The coffee morning is a great resource with a rich pool of people and is a valuable source of patient involvement for research. | Gareth Stephens – ROH |
Inequalities | Community Engagement Council | Made up of individuals and organisations across Birmingham who work in partnership with the Trust to help focus its work on addressing inequalities across the city. The strategy aims to tackle the “avoidable and unfair differences in physical and mental health outcomes between individuals or groups, and work with local communities to strive for equity”. Although this isn’t a research-focused group, it offers insight and views from a range of community organisations. | Mark Hillier – BWC |
Liver | Liver & Gastro-Intestinal PPIE group | Researching into inflammatory liver disease and inflammatory bowel disease – part of the NIHR Birmingham Biomedical Research Centre (BRC). | Laura Chapman – BRC |
Lung | Respiratory Patient Advisory Group (PAG) | Clinical trials and basic research in chronic lung diseases, especially alpha-1 antitrypsin deficiency. | Anita Pye – UoB |
Mental health | Institute of Mental Health Youth Advisory Group | Youth mental health. | Beckye Williams – UoB |
Think4Brum (T4B) | T4B the youth advisory group for Forward Thinking Birmingham (FTB), a 0-25s mental health service. It gives young people, especially those who have used mental health services, an opportunity to get directly involved in FTB, helping to shape the design and delivery of services. It provides members with the support and encouragement to have their say, as well as offering training opportunities and the chance to get involved in lots of different activities. This group has experience of being involved in research both within the Trust and with external partners. | Think4Brum – BWC | |
Lived experience action research (LEAR) group | Founded in 2019, the LEAR group consists of 15 service users and carers and is also open to Trust staff with lived experience of mental health conditions. They are a very supportive and passionate group with a range of experiences, meeting monthly and welcoming guest speakers looking for service user input into research grant submissions or service evaluations. When required, splinter groups can be set up for group members to support ongoing research projects. | Linda Everard – BSMHFT | |
Muscle health | Muscle Health PPI group | Researching into poor skeletal muscle health and frailty in patients with multiple long-term health conditions – part of the NIHR Birmingham Biomedical Research Centre (BRC) | Laura Chapman – BRC |
NHS service improvements | Patient and Public Involvement Forums (PPIF) | Patient and Public Involvement Forums (PPIF) exist at each of the 4 UHB sites (Good Hope Hospital, Heartlands Hospital, Queen Elizabeth Hospital and Solihull Hospital). The PPIFs consist of 15-20 staff members, patients, carers and the public to ensure all voices are heard in the development of each hospital. | Rebecca McNamee – UHB |
Public health | PHRESH – Public Health RESearch for Health Consortium (PHRESH) Public Advisory Committee (PAC) | Climate change, air quality and health. | Lucy Oakey – UoB |
Rheumatology | Rheumatology Research Patient Partnership (R2P2) | Inflammatory Arthritis including rheumatoid arthritis, Sjogren’s syndrome, lupus, psoriatic arthritis, juvenile idiopathic arthritis. | R2P2 – UoB |
Social care | Lived experience panel | Adult social care group run by the Health Services Management Centre, College of Social Sciences, University of Birmingham. | Catherine Needham – UoB |
Pain | Centre of Precision Rehabilitation for Spinal Pain (CPR Spine) PPIE Group | This research centre focuses on pain and associated impairments, disability, and movement. Their research includes a variety of designs from basic science studies, development of new medical devices and measurement instruments, to clinical trials. See their website. As well as the PPIE group, the Centre manages a “pain register” – a database of individuals from across the UK who are living with pain and are able to participate in research (e.g. interviews, surveys, feedback on study documentation, ideas for research). | CPR Spine – UoB |
IMPACT Co-production Advisory Group | A UK-wide group of people who draw on care and support and unpaid carers supporting the work of IMPACT (the UK centre for implementing evidence in adult social care). | Suzie Crowter – UoB | |
Stroke | COMbAT Fatigue Patient, Carer & Public Involvement & Engagement (PCPIE) Group | Stroke research, applied health research. | Caroline McKay – UoB |
Women’s health | C-POP Patient Advisory Group | Women’s and maternal health – sensitive and challenging clinical research questions around pelvic organ prolapse. | Jacq Emkes – UoB |
Maternity and neonatal voices partnership (MNVP) | An NHS working group of service users, commissioners, community organisations and health professionals (midwives and doctors) who work together to review and contribute to the development of local maternity care, covering Birmingham United Maternity Partnership (BUMP) which includes all maternity units in Birmingham and Solihull. Although this group isn’t focused on research, there are opportunities to share research updates and involvement opportunities with its membership. | MNVP group – BWC | |
OPTIMAL Patient Advisory Group (multiple long-term conditions) | Living with multiple long-term conditions. | Becky Birch – UoB | |
Tommy’s National Centre for Miscarriage Research patient voices | Maternal health and pregnancy loss. | Leah Fitzsimmons – UoB | |
The Hildas PPIE group | Most of our women’s health research projects are related to metabolic health, including topics such as: Polycystic Ovary Syndrome (PCOS); Gestational Diabetes Mellitus (GDM) and Type 2 Diabetes (T2D) in women; premature adrenarche; Mild Autonomous Cortisol Secretion (MACS); and pregnancy complications of metabolic origin. See the Hildas website for additional information. | The Hildas – UoB | |
CHAPTER and WOVEN PPIE groups | Clinical trials covering surgical site infection and perineal trauma. | Katie Morris – UoB | |
Other | AMIGOs (Advisory Members of Involvement Guidance and Outreach) | Our group uses mathematical models to solve healthcare problems, with the aim to support and improve diagnosis, treatment outcomes, and improve patient lifestyles. | Aileen Delaney – UoB |
Patient Reported Outcome Measures (PROMS) Group | Generating evidence and guidance to inform equitable patient-reported outcome collection in early phase trials to inform regulatory decision making. | Joe Lanario – UoB |