Birmingham launches young people’s liver transplant support group

Young people preparing for liver transplant are set to benefit from a new support group in Birmingham. Through its founding member University Hospitals Birmingham, BHP has the largest organ transplantation programme in Europe. The liver paediatric team, based across UHB and fellow member Birmingham Children’s Hospital, has completed 260 paediatric liver transplants in the last 12 months. Philippa Lewis, Transitional Youth Worker Livers, explained: “A group of young liver transplant patients all raised their voice … Continue reading “Birmingham launches young people’s liver transplant support group”

World-leading trial for rare disease patient

A patient at BHP founder member University Hospitals Birmingham NHS Foundation Trust (UHB) is one of just four people in the UK taking part in a worldwide clinical trial for Pompe disease, a rare, genetically inherited condition affecting less than 1,000 people in the UK. Charles Power, 59, lives in Halesowen and was referred to a chest specialist at Dudley Hospital after issues with breathing. After an initial referral to a neurologist at Dudley Guest … Continue reading “World-leading trial for rare disease patient”

Midlands regional health partnership strengthened

Birmingham Health Partners and the West Midlands Academic Health Science Network (WMAHSN) have reinforced their strong working relationship through the appointment of BHP Managing Director Dr John Williams to the WMAHSN board. The appointment is part of a wider restructure which has seen four new strategic roles created, which reflect the priorities of the new five-year licence period for the WMAHSN – approved by NHS England last year as part of a ten-year vision to … Continue reading “Midlands regional health partnership strengthened”

World first: gene therapy trial for rare disease patient

A patient at BHP’s Queen Elizabeth Hospital Birmingham (QEHB) has become the first person in the world to take part in a pioneering gene therapy trial for his rare disease. Simon Smith, 45, was diagnosed with Ornithine Transcarbamylase (OTC) deficiency as a teenager.   Although he defied medical expectations by living a full life in his 20s and 30s, in recent years Simon’s health took a turn for the worse. This resulted in a referral … Continue reading “World first: gene therapy trial for rare disease patient”

New software makes lethal heart conditions easier to spot

Software developed by BHP founding member the University of Birmingham has the potential to improve the identification, prevention and treatment of dangerous heart conditions. The heart’s pumping ability is controlled by electrical activity that triggers the heart muscle cells to contract and relax. In certain heart diseases such as arrhythmia, the organ’s electrical activity is affected. Cardiac researchers can already record and analyse the heart’s electrical behaviour using optical and electrode mapping, but widespread use … Continue reading “New software makes lethal heart conditions easier to spot”